Serving the community since 1869

Events

Please search using keywords or by using the reference number printed in the paper e.g. 123456. Purchased photos are for private use only.

Windsor family to take on sponsored walk to raise funds into research for rare genetic syndrome

Jade Kidd

Follow me on Twitter

jadek@baylismedia.co.uk

01:39PM, Friday 10 October 2025

Windsor family to take on sponsored walk to raise funds into research for rare genetic syndrome

Credit: Jeff Whitehill.

A sponsored walk looking to raise awareness and funds for a rare genetic syndrome is set to return to Windsor Great Park for the third time.

Windsor resident Claire Whitehill and her family will be taking on the sponsored walk this Sunday as part of the CSNK2A1 Foundation’s global Boundless Possibilities Run, Walk and Roll event, taking place across Saturday, October 11 and Sunday, October 12.

The event brings together researchers, clinicians, families and friends to raise awareness and funds into research for Okur-Chung Neurodevelopmental Syndrome (OCNDS).

The syndrome was first discovered in 2016 and is caused by a change on the CSNK2A1 gene, located in chromosome 20.

Some of its common symptoms include speech delay or an inability to speak, autism traits, learning disabilities, short statute, feeding difficulties and cognitive impairment.

Claire’s daughter Kirsty, 14, was first diagnosed in 2018 after being put forward for the 100,000 Genomes Project, which was announced by former Prime Minister David Cameron in 2012.

Claire said: “This event means so much to us because every step we take together opens new doors – advancing research, supporting families, and showing up for one another.

“With hope and science as our compass the possibilities are endless.”

The Kirsty’s Team fundraiser can be viewed at: https://runsignup.com/Race/117206/Donate/vooBzy8m8z9zUtkQ

Events

Windsor family to take on sponsored walk to raise funds into research for rare genetic syndrome

Spooky version of WiFi Wars game show to come to Norden Farm

Historic Windsor Castle rooms to be adorned with decorations this Christmas

In pictures: Hundreds of walkers take on annual Maidenhead Boundary Walk

In pictures: Visitors see iconic Knight Rider car at Maidenhead Comic Con

Griff Rhys Jones: The Cat’s Pyjamas comedy at Windsor Theatre Royal

Record entries compete at 172nd Ploughing Match and Country Show

'Spectacular' Laser Light Show to take over Dinton Pastures Country Park

Maidenhead Comic Con returns with movie cars and meet-and-greets

Iconic cars and free character meet-and-greets at upcoming Maidenhead Comic Con

Vintage tractors and produce auction at 172nd Ploughing Match and Country Show

Norden Farm launches major fundraiser after costs rise by more than £100,000

Brewery at 'heart of Windsor Beer Mile' hosts third Oktoberfest celebration

FIRST CLASS 137014

FIRST CLASS 137013

FIRST CLASS 137015

FIRST CLASS 137016

FIRST CLASS 137036

HENLEY 250968

Baylis Media Photo Galleries

HENLEY 250968

FIRST CLASS CAVERSHAM PRIMARY 2 CLASSES

FIRST CLASS 136998

FIRST CLASS Oldfield Primary School Chiltern Road Maidenhead SL6 1XA 2 classes - ZEBRA CLASS , Miss Blake, Mrs Prahbu, Miss Wheeler, Miss French

FIRST CLASS 137015

FIRST CLASS Cookham Dean CE Primary School Bigfrith Lane Cookham Dean SL6 9PA 1 class

FIRST CLASS 137002

FIRST CLASS Oakfield First School Imperial Road Windsor SL4 3RU 2 classes - ASH CLASS

FIRST CLASS 137077

FIRST CLASS Holyport CE Primary School Stroud Farm Road Holyport SL6 2LP 1 class DONALDSON CLASS

FIRST CLASS 137076

FIRST CLASS Foxes Piece School Newfield Road, Marlow 1 class RECEPTION

FIRST CLASS 137072

FIRST CLASS Manor Green school

FIRST CLASS 137074

FIRST CLASS St Michael's Primary School School Road, Sunninghill SL5 7AD 1 class ROBIN CLASS Mrs Tiley

Days Gone By - Photos

Photos from The Maidenhead Advertiser 150th Anniversary book 'Days Gone By' are now available to buy.

Charity Events

Galleries of local charity events. To search for a specific photo, please use the reference number printed in the newspaper caption

Her Majesty the Queen

View Her Majesty the Queen in our local galleries. To search for a specific photo, please use the reference number printed in the newspaper caption.

Theresa May

Pictures of Maidenhead MP, Theresa May. To search for a specific photo, please use the reference number printed in the newspaper caption.

Galleries from Slough and its surrounding villages. To search for a specific photo, please use the reference number printed in the newspaper caption.

Galleries from Marlow and its surrounding villages. To search for a specific photo, please use the reference number printed in the newspaper caption.

Galleries from Windsor and its surrounding villages. To search for a specific photo, please use the reference number printed in the newspaper caption.

Galleries from Maidenhead and its surrounding villages. To search for a specific photo, please use the reference number printed in the newspaper caption.